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vanitashaze: An indistinct figure running down a dark hallway, silhouetted by light (blinding light)
I bought an EZ Lite folding power wheelchair last week. It's a weird thing to be self-conscious of considering that I already have a mobility scooter, but it feels like a step that I don't deserve to take somehow, like disability is something I'm just playing dress-up in instead of something that hugely affects my life and the choices I make every day and will definitely affect my experience on the trip that I'm going on in May. Maybe it's that being a part-time ambulatory wheelchair user is so much scarier than being a part-time ambulatory scooter user and I'm afraid that people will think I'm faking and get angry at me when  I stand up and walk a bit. I don't think my family is very supportive of it, even though I've explained that taking Scoot on public transit is awful and it breaks down into pieces but can't lift them in and out of a car by myself and thus the circumstances in which Scoot is really useable are limited.

I guess I can comfort myself with the fact that the chair is a $2,300 model that I got for $150 plus another $100 to repair the left wheel motor and get new tires, which is objectively a fantastic deal and I can probably resell it if it turns out that I don't/can't use it -- it's not a terribly powerful motor and it's really designed more for indoor use than the outdoor use I need it for, but I'll take it for a proper test drive once the new motor gets here and we'll see.
vanitashaze: Sokka from Avatar the Last Airbender screaming into the sky with "INCOHERENT RAGE!" text. (RAGE)
Gotta love the days when you have just enough energy to be high-functioning while getting ready in the morning and then crash as soon as you leave the house for a 10-hour day of work. Have I mentioned that I hate chronic fatigue? I feel like it's the only thing I blog about these days, but this level of exhaustion is all-consuming -- mentally, physically, emotionally -- and it's the only thing I can think about when I even have the energy to think. At least the newest chapter of Atlas was mostly already written when this latest flare-up hit and I only need to blurt out a few remaining sections.
vanitashaze: Arthur from Merlin staring at a chicken with confusion and the text "What is this I don't even" (I can't even)
Weird migraine things: feeling like the right side of your face is melting off your skull even though you know that it absolutely isn’t. Also, muscle spasms so bad that you look like the top half of you is having a seizure while you’re walking to work. I’m continually amused at how determined city dwellers are to just Not See weird stuff, but there are a lot of homeless people in this neighborhood, so I suppose people are used to ignoring people who are acting strangely or asking them for money.
vanitashaze: Profile of Teyla from Stargate Atlantis. (we burn our boats each new year)
It’s weird how the platform dictates posting habits — I used to post fairly regularly ish on LJ back in the day when that was just how things went, but ever since using Tumblr I’ve gotten into the habit of just reblogging other people’s content and not creating my own. Possibly because my life is... uh, not that interesting. Bad brains mean that I’m largely withdrawing from the world even as I’m trying hard not to, but I just don’t have the energy to do much other than function and go to work in the evenings and write Atlas and occasionally do the social thing and go to physical therapy and brain therapy, which as I write it I realize is a lot, but I still can’t shake the feeling that I should be doing more. I used to be able to do a lot more. It feels weird to say I’m still in mourning for who I used to be and the life I led, because a) I wasn’t happy then either, and b) I’m actually better than I was even last year, if not back to where I was. I want to believe that I can get to a place where I’m satisfied with my life. Is that so much to ask of the universe? Or of myself?

In exciting news, I might be going back to school in the fall, though! I’m strongly considering becoming an occupational therapy assistant. So that’s cool.

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vanitashaze: Arthur during the last kick. (Default)
vanitashaze

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